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This is a blog about us Honeys. We've been married for 6 years, live in Littleton, CO, have a Chihuahua named Dobby, a Rat Terrier named Scarlett, three awesome cats (all referred to as our Furry Kids!) and some fish.
In November 2007 I was diagnosed with Cholangiocarcinoma (bile duct cancer of the liver) and nave been undergoing chemotherapy since December '07 & Proton Radiation Therapy at M.D. Anderson in Houston, TX from December '08 - February '09, and then back on eternal chemo until we get the tumor to shrink away from one salvageable vein in the liver so that it can be surgically removed. We use this blog to keep family and friends updated on our struggles, loves, challenges, celebrations, goals, ideas and the general daily grind!

Tuesday, June 30, 2009

It's Coming, the Fear - Despite the Makeup Mask

Tomorrow's the day we see Dr. Curley. My fear has been quite low since we've been here, thanks to multiple distractions, lots of sleep and some helpful prescriptions that keeps the fear at bay. The blood draw was fine (I stood out in the hallway instead of the scary overly-filled waiting room of all those sick-looking people), Xray was easy (I got to help some new patients figure out how things work back in the dressing/waiting rooms and explained to them that the opening always goes to the back!), and the barium-chug and CT scan was even no big deal. I felt separated from it all. Like it wasn't me who was actually there doing it. Well, I knew it was me who was there going through the motions but I just didn't get myself way too involved in the procceses so as to keep from being too fearful. Whatever I did, it worked.
Today I mostly slept. Pete and Carol went out and about to shop for a couple of necessities while I snoozed the day away in the comfy bed that feels like a cloud! Tonight we met Bill and Auntie Deborah at a great pizza place here in town and just got back to the hotel from a wonderful visit with them!

What I neglected to bring up throughout this afternoon's happenings is how the fear is creeping up on me. I know there's nothing I can do about the outcome now...at least, no more than I could have done ever before even! And I'm thankful we worked through each step of this trip with my therapist in analyzing my fluctuating anxiety levels and what to do about them.

But the one thing we neglected to address was what to do AFTER we get WHATEVER news from Curley!!!! Is that when it'll be safe to exahle and maybe take another new breath? Am I supposed to immediately get on line and on the phone to let everyone know that new status of this tumor before even I have had a chance to absorb it? We'll have checked out of our hotel room, I know that already, so running back to the fluffy bed only to curl up in a pitiful ball for a few hours of good old fashioned self-pity is not an option! Fortunately, we're heading to the airport at 2ish to make our 5ish flight (have to return car, etc).

Besides all that and all this fancy talk....

I'm f*ing scared about what he's going to say to me.

"Well, nothing's changed in these three months."
or
"Well, I didn't see what I wanted to see on the images. There are new tumors in there."
or
"Well, you're S.O.L. so why don't you just go on home now?"

OMG. What am I to do?!?

I know this panic is temporary and actually it's under control with what all I've learned in therapy over the years (and especially the last couple of months with Barbara). I know everyone's praying for me and sending me good thoughts and I got an email from my oncologist in Denver saying that she'll never give up on me and that there are always different options to pursue back at home (which I often forget).

Regardless...

I'm shaking inside. I want to crawl into a ball in bed and not pack and not worry but just lie there and sleep or cry or zone out on my DS or anything.

Just make it over already. All this anticipation is too much for me. Let's just get it out there and move on.

Just don't give up on me, doctors. Please don't ever say I'm out of options!

7 comments:

Aunt Marti said...

Dear sweet Abbey girl, I love you so much, now breathe.

Selena said...

I am so sorry to have to feel like this! I do so much hope that the exercise of posting helped you to remember the ways you worked out with your therapist to deal with the anxiety and fear.

When I saw you last, I forgot to tell you my routine prayer for you. I won't put it all here, but part of it is thanking the Divine One for your courage and stength of spirit, which are so much a part of the wonderful person you are. The times of anxiety and fear will come and go, of course, and I hate that you have to suffer through them, but fundamentally you are one of the most courageous people I know (as well as being very cool in a lot of other ways for which I also offer thanks in my prayer).

with my love,
-- Selena

betsy said...

May you find peace, Abbey.

Maritzia said...

I've sent healing energy to you *and* to Dr. Curly, for a good outcome today. Hope everything goes well!

Maggie said...

You are not alone, Abbey Cadabbey! We all love you and support you and fight with you very much.

And, can I pretend to have the authority to speak for everyone else real quick and just say: Don't worry about us! Don't worry about updating us right that second. Don't worry about calling or emailing or giving results until YOU ARE READY. No matter how much we love and support you - we are behind you, no matter what! No matter what!!

You rock, girlfriend. Period.

Scruffybutt said...

Hey GF, I guess you're at the airport now and already have the news, whatever it is. We're still all holding your hand. And Pete's too. You are loved.
-Candace

nat said...

You describe the fear so well. I have I felt that too. I wish I knew how to stop it too!

I hope Curley had good news for you. Hang in there Garnet!