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This is a blog about us Honeys. We've been married for 6 years, live in Littleton, CO, have a Chihuahua named Dobby, a Rat Terrier named Scarlett, three awesome cats (all referred to as our Furry Kids!) and some fish.
In November 2007 I was diagnosed with Cholangiocarcinoma (bile duct cancer of the liver) and nave been undergoing chemotherapy since December '07 & Proton Radiation Therapy at M.D. Anderson in Houston, TX from December '08 - February '09, and then back on eternal chemo until we get the tumor to shrink away from one salvageable vein in the liver so that it can be surgically removed. We use this blog to keep family and friends updated on our struggles, loves, challenges, celebrations, goals, ideas and the general daily grind!

Wednesday, March 18, 2009

The Ol Radio Show

Do you subscribe to XM or Sirius Radio? Do you ever listen to the Doctor Radio channel? Well you might want to tune in today or tonight because two people that I admire in the world of young adults with cancer are going to be on there speaking out and spreading more awareness! This is who they are to me:

1) The website geared towards young adults (15-39) with cancer: I'm Too Young For This (i2Y, for those of us "in the know") was one of the first websites I found to be extremely helpful in the early days of my diagnosis. The site was founded by Matthew Zachary, another young adult cancer survivor and a strong spokesperson for our unique age group. For a long time I listened to the radio show called The Stupid Cancer Show via podcasts on iTunes, which Zachary DJs (is that the right word?). With this site and radio show in my pocket, I didn't feel so alone in this 30something confusing world of cancer and learned about some of the newest techniques being used in treating some of the trickiest cancers.

2) The newly published book: Everything Changes: The Insider's Guide to Cancer in Your 20s and 30s is my newest addiction! In the whole world of Amazon.com, this is the first book I could find that is geared specifically toward us young adults with cancer. We have different issues, concerns, important life stages than the more common pediatric and older adult patients. People need to know that nearly 70,000 young adults between 15 and 39 years old are diagnosed with cancer every year. And we don't all just have breast cancer, either! I've had the good fortune to become friends with the author, Kariol Rosenthal, and via her blog of the same name, I've used many of the valuable tips and tricks she offers up on there. Recently, she has agreed to help mentor and coach me through my first attempt at writing and publishing my own book on the subject!

(This radio podcast, all three websites and that incredible book are also priceless tools for caregivers, friends and family of us young adult cancer patients. If you're interested in advocating for our group or learning more about us, please check them out! And stay tuned here for an official book review of Everything Changes in the comming weeks!)

Okay, so, now you know those people and their web sites.

What you need to know next is that these two individuals (Kariol Rosenthal and Matthew Zachary) were featured live on the Sirius and XM Radio show "Oncology" on the Doctor Radio channel (Sirius 114 & XM 119)! The show played at 2pm EST today, but will replay tonight at 10pm EST (that's 8pm Mountain time!) and again on Sunday at 2pm EST! PLEASE tune in and give a listen to these awesome young adults who happen to have cancer and are speaking loudly to alert the world of our presence! They also spread the word of the immediate need for doctors to take us seriously so that they can detect cancer in its early stages for others in our generation!

Kairol says on her Facebook page: "If you are not a member of Sirius Radio you can LISTEN FREE ONLINE by signing up for a free three day trial: http://www.sirius.com/freetrial/register. "

Tune in!

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